We made it home from Salt Lake. It was a great visit. The neurosurgeon
was very pleased with Bella's MRI. It looks as good as it can with
half of her brain missing on the right side. Her ventricles are still
large but that is because of the brain loss. Her ETV is working great.
In fact the MRI showed it so clearly that he asked if he could use her
scan for teaching purposes. He said that unless something unusual
happens he doesn't need to see her for a whole year!!!
The eye surgeon was also very happy with how Bella's eyes look. They
are still positioned correctly and he lowered the prescription on her
glasses. I'm glad it's done and we are home. I always prepare myself
for the worst when seeing her MRI. It never gets easier to see the
giant black holes in her brain. BUT Matt and I were listing things she
can do and here is what we came up with.
She knows and can point to:
hair
ears
eyes
nose
mouth
tongue (she sticks it out)
cheeks
chin
belly
tubie (yes we taught her she has a belly button and a tubie button and she can point to both)
toes
hands
finger
she knows where her diaper is.
She consistently uses sign language for:
yes
no
more
me
up (she invented her own sign for this but you know what she wants)
and we are working on please, thank you, all done
She rolls to get places now. She laughs, gets sad and cries
(especially when I sing Twinkle Twinkle Little Star), and she gets angry
(mad enough to bite her own hand).
She is close to sitting and loves to stand and walk with someone holding her.
She has come so far and we are so proud of her. We also want to thank
Granny and Aunt Bebe for watching the olders kiddos. I also know that
Bella benefits greatly from all the love and stimulation she gets from
her brother and sister. And thanks to all of you, our family and
friends for all your prayers, positive thoughts, and kind words!!! We
feel so blessed!



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